Tag Archives: Raising Children With Food Allergies

Good News! I am to be published again…

first day of school

Well, I got GREAT news again today.  I have a second article picked up by The Mighty that will be published in the future.  When it is published, they will send me the email with the link, which I will then pass along to you.

In the meantime, my ALLERGY BOY is officially in the 5/6 year old class at our local school, and the school is scared.  I am scared.  Max’s dad is scared.  I think we are ALL scared.  In a small village, Max is the first to arrive carrying EpiPens and life-threatening allergies.  But it has been hashed out: he will only ever consume or touch his food.

This may not seem like a big deal in your country where food allergies are well known, discussed and people are pro-active on the fight-BUT in the country which we reside, it is still a very big unknown, under discussed, and, therefore, very scary for all of us in the game.

Emphasizing how scary this life we walk in this world we walk is, I bring you an absolutely tragic story of a woman that, after being repeatedly assured at a restaurant in Hungary her food was nut free in all ways, suffered anaphylactic shock that has left her in a state of suffering from life-altering brain injuries.

I have already watched my son receive CPR treatment while he was in a full-coma in the ICU.  The nurses kicked us out and bagged our son while waiting for the doctor to arrive.  It is because of their life-saving treatments, he appears okay.  Eventually they were able to intubate him and get a steady flow of oxygen going.

But, the thing is, every single day that I walk my son outside and purchase a food item for him, I risk this exact thing happening.  Because, no matter how many guarantees of safety we are given, my son walks a very unforgiving road.

Fear makes me want to hide him away.  But that is not living.

And so we walk.  Hoping for life.

***

Please click here to watch the video and read the link:

Heartbreaking scenes on This Morning as ex-producer left paralysed by nut allergy is comforted by Ruth Langsford on show

Will this make me die?

nungesser 3

My poor little man.  He LOVES Kinder Eggs.

What are those, you may ask?  OH THEY ARE HEAVEN ENCASED IN CHOCOLATE, I may add.

They are brilliant itty bitty little toys that half of the world loves, the other half hates.  The parents, we are a mixture of in-between.

There are YouTubes.  Millions and millions of hits that have children seriously JUST UNWRAPPING the Kinder Egg and showing what is inside this chocolate delight.

It’s ridiculous…but yet guess what my children choose to watch when they get TV?

Yes.  That’s right—The Kinder Egg kids and these ridiculous toys.

But my children love them…just like the kid next door.  And they are FANTASTIC for bribery!

Yes, I proudly bribe my children and expect great results from said bribery 😉

Even my allergy kid LOVES these surprise eggs…He just has to get a little more creative when opening them.

Sometimes he smashes them open with a hammer.

Other times, he puts on latex gloves.

Once I wrapped his hands in tin foil.

Another time, plastic wrap.

We have taught him to break it open.  Then he waits for us to move the chocolate, clean the table, and wipe down the plastic egg surprise container.

WHY WOULD YOU DO THIS????  You may ask.

Isn’t this a LOT of work?

Yes.  It is.  We do it because in this life he leads, it’s a small amount of time for my boy to be “just one of the guys!”  Even though Just One of the Guys requires lots of prep and cleaning work.

But he is thrilled each time—even though he can’t eat the treat.

Today, however, he surprised me.  I was cleaning the mess that was made (his sister went poopy on the potty, earning her and Maxie a kinder egg—see post here), when Maxwell stated, “Is chocolate what will kill me???”

I stopped and stared.

He got it.

He got that there are foods out there that will kill him.

That if he eats or ingests or even samples them, he very very very very well could die.

And I am not sure if at that moment I was okay, happy, relieved, or sad.

Maybe I was a mixture of ALL because it’s the reality of his world.  But it’s not the reality of mine.  Or his dad’s or his sisters or even his cousins.

My son could die if he simply ingests the wrong food.

And we live every moment of every day making sure that his food is safe so that he will live.

Boy—when I woke this morning, I had NO IDEA that a Kinder Egg would bring such perspective into my life.

Not just the annoying little plastic toy 😉