Tag Archives: allergy awareness

The 504 Plan for your allergy kid

max swinging at school

I studied and wrote many plans for individual student’s education called IEPs.
These are plans designed to meet the educational needs of your student that is receiving special education services.  There, however, is another plan out there that many may not know about and is just as important.

It’s called a 504 Plan, and you, if you have not yet, should really look into this plan for your child.

According to the USDA, “when in the licensed physician’s assessment, food allergies may result in severe, life-threatening (anaphylactic) reactions, the child’s condition would meet the definition of ‘disability’.”

FARE recommends that parents of children with food allergy create, in collaboration with their school, a written food allergy management plan. One type of plan is called a 504 Plan, which is available under a federal civil rights law, Section 504 of the Rehabilitation Act of 1973

Like I have stated many times before, I am not in a country that is yet versed or advanced yet for children like my son, so the school that we are attending is learning with my son’s very attendance on how to properly care for an allergy child.  I am grateful that they want to learn.  This is huge.

As an allergy-parent with a kid finally entering kindergarten alone, this is also a new and scary world for me, too.  Perhaps you are where I am.  Where your allergy-kid is attending, for the first time, public or private school, and you are not sure where to go or what to do to ensure your child’s safety.

Hopefully this post will help guide or direct you on how BEST you can advocate for your child’s educational care, safety, and needs.

The greatest thing you will also have to remember is that this is your right as a parent.  This is your student’s right as a student.  There is no shame in advocating for your child and seeking a plan to remind the school that they need to address his/her needs.  This makes you a mom or dad with the best mission of all: fighting for your child’s life while providing him/her the best education out there!

I hope you find the following information as helpful as I have:

What is an IEP?

Understanding 504 Plans

504 Plans for Food Allergies 

Section 504 and Written Management Plans (by FARE) 

SAMPLE ACCOMODATIONS FOR 504/IEP/IHP

Side note: a private school must be receiving federal funding in order for the need to comply to the 504 regulations.

If you have any other sites regarding children and education in regards to allergies, I’d love for you to link them in the comments.  Also, remember that sharing is caring because there are probably many other parents out there like you and me walking this road for the first time and in need of good and proper help and direction, so please share freely to help the moms or dads out there just like me!

Be blessed, fight hard, and keep that kid safe.

 

 

 

Raising a Nutty Kid…My child’s #TBT and Reaction story.

My son did not have a killer kiss.  It was, however, a HUGE wake-up that it could actually happen.  I have shared my son’s story before, and since today is #TBT Your child’s reaction and story, I thought I would just link it in here, so you have a chance to read.

As in every story, his is evolving…every day.  And, every day, I learn more about him, what makes him sick, how I fight every day for his life, and try not to panic about his future.

But I know that I am not alone.  So many of you out there are like me.  Fighting for your children’s safety, too.  I commend you!  Carry on, Mom and Dad warriors.  You rock!

Here’s my kid’s story.  And a great look at how Maxwell’s allergies have sure humbled this once very arrogant momma 😉

Raising a Nutty Kid—Maxwell’s Story!

turnittealweek

Turn it Teal and Sarah Jessica Parker

mymax.com

Today is Turn it Teal and Allergy Awareness!

My friends, I live in a country that eats a LOT of nuts and uses dairy for everything.  It is virtually impossible to even take my son to a restaurant to eat.

At one restaurant recently, every single thing on the menu had either nuts or dairy in it.

SERIOUSLY.

Except the salad—and what 3 year old runs around eating a salad???  Not mine.  And, truthfully, nearly every salad had nuts.

So what did I do?  I asked for a fresh bowl of fruit so that he could eat at the table with the rest of us (No, I was not prepared with a full meal.  Sorry, folks.  Real mom sometimes = unprepared).

It was a bit of a fight, but eventually the waiter said he could bring a bowl of fresh fruit for my son.

When he brought it, you would NEVER believe what he brought.

JAM.

Strawberry jam.

Raspberry jam.

Blueberry jam.

And then bananas that the chef smashed up into a puree.

My son took one look at the bowl of jam and played with it.  But did not eat it.

Listen, I know it’s my fault for being ill-prepared at a restaurant.  But, to be fair, I did not expect to see a menu without a SINGLE item outside of salad on it for my allergy kid.  And I thought asking for fresh fruit could tide him over until we had to go.

Except the fresh fruit was jam.

And jam is not something most of us will eat by the spoonful.

I understand that I am the one that lives in a country that eats nuts (especially walnuts) on everything and uses milk or butter in nearly everything, but I also know that my son lives here, and I know that I am not the only mom in Poland with a kid that has these allergies.

Poland is GREAT at labeling their items.  Better than other countries that I have seen.  So, I am so grateful for that when I go to grocery stores for shopping.

But, public outings are still so hard with my kid.

And, so, Poland, I ask that as this week approaches—the Turn it Teal and Allergy Awareness Week, that we all understand that allergies aren’t just a nuisance—they are life or death issues.

My son has them.

And he is not alone.

Here are some videos and articles and information that I am VERY happy is out there…and I am VERY happy a public face is behind one of them, Sarah Jessica Parker, whose son has a peanut/nut allergy…

It’s when faces are seen and voices are heard that our struggle becomes more widely recognized and real to the many out there that don’t have to fear, day in and out, for their loved ones’ lives.

So, I hope you have a couple clicks and watch as we begin to address the world with our Allergy Awareness Voice!

My son’s very life depends on it.

xo b

Turn it Teal!

Sarah Jessica Parker on “The View” (her son has peanut/nut allergies and had an anaphylactic episode—that’s how they found out)

Anaphylaxis for Reel