Category Archives: Education

The 504 Plan for your allergy kid

max swinging at school

I studied and wrote many plans for individual student’s education called IEPs.
These are plans designed to meet the educational needs of your student that is receiving special education services.  There, however, is another plan out there that many may not know about and is just as important.

It’s called a 504 Plan, and you, if you have not yet, should really look into this plan for your child.

According to the USDA, “when in the licensed physician’s assessment, food allergies may result in severe, life-threatening (anaphylactic) reactions, the child’s condition would meet the definition of ‘disability’.”

FARE recommends that parents of children with food allergy create, in collaboration with their school, a written food allergy management plan. One type of plan is called a 504 Plan, which is available under a federal civil rights law, Section 504 of the Rehabilitation Act of 1973

Like I have stated many times before, I am not in a country that is yet versed or advanced yet for children like my son, so the school that we are attending is learning with my son’s very attendance on how to properly care for an allergy child.  I am grateful that they want to learn.  This is huge.

As an allergy-parent with a kid finally entering kindergarten alone, this is also a new and scary world for me, too.  Perhaps you are where I am.  Where your allergy-kid is attending, for the first time, public or private school, and you are not sure where to go or what to do to ensure your child’s safety.

Hopefully this post will help guide or direct you on how BEST you can advocate for your child’s educational care, safety, and needs.

The greatest thing you will also have to remember is that this is your right as a parent.  This is your student’s right as a student.  There is no shame in advocating for your child and seeking a plan to remind the school that they need to address his/her needs.  This makes you a mom or dad with the best mission of all: fighting for your child’s life while providing him/her the best education out there!

I hope you find the following information as helpful as I have:

What is an IEP?

Understanding 504 Plans

504 Plans for Food Allergies 

Section 504 and Written Management Plans (by FARE) 

SAMPLE ACCOMODATIONS FOR 504/IEP/IHP

Side note: a private school must be receiving federal funding in order for the need to comply to the 504 regulations.

If you have any other sites regarding children and education in regards to allergies, I’d love for you to link them in the comments.  Also, remember that sharing is caring because there are probably many other parents out there like you and me walking this road for the first time and in need of good and proper help and direction, so please share freely to help the moms or dads out there just like me!

Be blessed, fight hard, and keep that kid safe.

 

 

 

Good News! I am to be published again…

first day of school

Well, I got GREAT news again today.  I have a second article picked up by The Mighty that will be published in the future.  When it is published, they will send me the email with the link, which I will then pass along to you.

In the meantime, my ALLERGY BOY is officially in the 5/6 year old class at our local school, and the school is scared.  I am scared.  Max’s dad is scared.  I think we are ALL scared.  In a small village, Max is the first to arrive carrying EpiPens and life-threatening allergies.  But it has been hashed out: he will only ever consume or touch his food.

This may not seem like a big deal in your country where food allergies are well known, discussed and people are pro-active on the fight-BUT in the country which we reside, it is still a very big unknown, under discussed, and, therefore, very scary for all of us in the game.

Emphasizing how scary this life we walk in this world we walk is, I bring you an absolutely tragic story of a woman that, after being repeatedly assured at a restaurant in Hungary her food was nut free in all ways, suffered anaphylactic shock that has left her in a state of suffering from life-altering brain injuries.

I have already watched my son receive CPR treatment while he was in a full-coma in the ICU.  The nurses kicked us out and bagged our son while waiting for the doctor to arrive.  It is because of their life-saving treatments, he appears okay.  Eventually they were able to intubate him and get a steady flow of oxygen going.

But, the thing is, every single day that I walk my son outside and purchase a food item for him, I risk this exact thing happening.  Because, no matter how many guarantees of safety we are given, my son walks a very unforgiving road.

Fear makes me want to hide him away.  But that is not living.

And so we walk.  Hoping for life.

***

Please click here to watch the video and read the link:

Heartbreaking scenes on This Morning as ex-producer left paralysed by nut allergy is comforted by Ruth Langsford on show