Category Archives: Children With Food Allergies

The 504 Plan for your allergy kid

max swinging at school

I studied and wrote many plans for individual student’s education called IEPs.
These are plans designed to meet the educational needs of your student that is receiving special education services.  There, however, is another plan out there that many may not know about and is just as important.

It’s called a 504 Plan, and you, if you have not yet, should really look into this plan for your child.

According to the USDA, “when in the licensed physician’s assessment, food allergies may result in severe, life-threatening (anaphylactic) reactions, the child’s condition would meet the definition of ‘disability’.”

FARE recommends that parents of children with food allergy create, in collaboration with their school, a written food allergy management plan. One type of plan is called a 504 Plan, which is available under a federal civil rights law, Section 504 of the Rehabilitation Act of 1973

Like I have stated many times before, I am not in a country that is yet versed or advanced yet for children like my son, so the school that we are attending is learning with my son’s very attendance on how to properly care for an allergy child.  I am grateful that they want to learn.  This is huge.

As an allergy-parent with a kid finally entering kindergarten alone, this is also a new and scary world for me, too.  Perhaps you are where I am.  Where your allergy-kid is attending, for the first time, public or private school, and you are not sure where to go or what to do to ensure your child’s safety.

Hopefully this post will help guide or direct you on how BEST you can advocate for your child’s educational care, safety, and needs.

The greatest thing you will also have to remember is that this is your right as a parent.  This is your student’s right as a student.  There is no shame in advocating for your child and seeking a plan to remind the school that they need to address his/her needs.  This makes you a mom or dad with the best mission of all: fighting for your child’s life while providing him/her the best education out there!

I hope you find the following information as helpful as I have:

What is an IEP?

Understanding 504 Plans

504 Plans for Food Allergies 

Section 504 and Written Management Plans (by FARE) 

SAMPLE ACCOMODATIONS FOR 504/IEP/IHP

Side note: a private school must be receiving federal funding in order for the need to comply to the 504 regulations.

If you have any other sites regarding children and education in regards to allergies, I’d love for you to link them in the comments.  Also, remember that sharing is caring because there are probably many other parents out there like you and me walking this road for the first time and in need of good and proper help and direction, so please share freely to help the moms or dads out there just like me!

Be blessed, fight hard, and keep that kid safe.

 

 

 

Good News! I am to be published again…

first day of school

Well, I got GREAT news again today.  I have a second article picked up by The Mighty that will be published in the future.  When it is published, they will send me the email with the link, which I will then pass along to you.

In the meantime, my ALLERGY BOY is officially in the 5/6 year old class at our local school, and the school is scared.  I am scared.  Max’s dad is scared.  I think we are ALL scared.  In a small village, Max is the first to arrive carrying EpiPens and life-threatening allergies.  But it has been hashed out: he will only ever consume or touch his food.

This may not seem like a big deal in your country where food allergies are well known, discussed and people are pro-active on the fight-BUT in the country which we reside, it is still a very big unknown, under discussed, and, therefore, very scary for all of us in the game.

Emphasizing how scary this life we walk in this world we walk is, I bring you an absolutely tragic story of a woman that, after being repeatedly assured at a restaurant in Hungary her food was nut free in all ways, suffered anaphylactic shock that has left her in a state of suffering from life-altering brain injuries.

I have already watched my son receive CPR treatment while he was in a full-coma in the ICU.  The nurses kicked us out and bagged our son while waiting for the doctor to arrive.  It is because of their life-saving treatments, he appears okay.  Eventually they were able to intubate him and get a steady flow of oxygen going.

But, the thing is, every single day that I walk my son outside and purchase a food item for him, I risk this exact thing happening.  Because, no matter how many guarantees of safety we are given, my son walks a very unforgiving road.

Fear makes me want to hide him away.  But that is not living.

And so we walk.  Hoping for life.

***

Please click here to watch the video and read the link:

Heartbreaking scenes on This Morning as ex-producer left paralysed by nut allergy is comforted by Ruth Langsford on show

Will this make me die?

nungesser 3

My poor little man.  He LOVES Kinder Eggs.

What are those, you may ask?  OH THEY ARE HEAVEN ENCASED IN CHOCOLATE, I may add.

They are brilliant itty bitty little toys that half of the world loves, the other half hates.  The parents, we are a mixture of in-between.

There are YouTubes.  Millions and millions of hits that have children seriously JUST UNWRAPPING the Kinder Egg and showing what is inside this chocolate delight.

It’s ridiculous…but yet guess what my children choose to watch when they get TV?

Yes.  That’s right—The Kinder Egg kids and these ridiculous toys.

But my children love them…just like the kid next door.  And they are FANTASTIC for bribery!

Yes, I proudly bribe my children and expect great results from said bribery 😉

Even my allergy kid LOVES these surprise eggs…He just has to get a little more creative when opening them.

Sometimes he smashes them open with a hammer.

Other times, he puts on latex gloves.

Once I wrapped his hands in tin foil.

Another time, plastic wrap.

We have taught him to break it open.  Then he waits for us to move the chocolate, clean the table, and wipe down the plastic egg surprise container.

WHY WOULD YOU DO THIS????  You may ask.

Isn’t this a LOT of work?

Yes.  It is.  We do it because in this life he leads, it’s a small amount of time for my boy to be “just one of the guys!”  Even though Just One of the Guys requires lots of prep and cleaning work.

But he is thrilled each time—even though he can’t eat the treat.

Today, however, he surprised me.  I was cleaning the mess that was made (his sister went poopy on the potty, earning her and Maxie a kinder egg—see post here), when Maxwell stated, “Is chocolate what will kill me???”

I stopped and stared.

He got it.

He got that there are foods out there that will kill him.

That if he eats or ingests or even samples them, he very very very very well could die.

And I am not sure if at that moment I was okay, happy, relieved, or sad.

Maybe I was a mixture of ALL because it’s the reality of his world.  But it’s not the reality of mine.  Or his dad’s or his sisters or even his cousins.

My son could die if he simply ingests the wrong food.

And we live every moment of every day making sure that his food is safe so that he will live.

Boy—when I woke this morning, I had NO IDEA that a Kinder Egg would bring such perspective into my life.

Not just the annoying little plastic toy 😉

The Mighty!

Perhaps you are here because you have been directed here by The Mighty, the online site that focuses on Real People Real Stories!  

If so, WELCOME!  I hope that you enjoy Allergy to the Max!  A site I started to find better ways to manage being a mommy to Max.  He’s a tough nut to crack, which is ironic considering he can’t even TOUCH A NUT!

If not, then I hope that you’ll hop on over to The Mighty and see a post that they recently picked up!  Super excited about it.

Here it is:  5 Tips for Managing Your Child’s Food Allergies Abroad .

Enjoy the read and please like & share,

Brooke

Mom of Max

No bake dairy and nut free S’mores!

Unfortunately for me, these s’mores aren’t so easy to make—it has taken the collaboration of 3 countries:  Holland, The United States, and Poland.  But since I’ve gathered all the products together under one Polish roof, my allergy kid has had a blast making and especially eating his no-bake smores.  If you don’t have the exact products where you are, have fun trying to find substitutions !  

We used:  marshmallow fluff, graham crackers, and non-dairy chocolate sprinkles.


Let me tell you, after compiling such a fun snack, there is only one thing left to say, “Smacznego!”

Unintentional Allergy Pumpkin!

My allergy kid doesn’t live where Trick or Treating is common, so he has never really been.  But we still have a lot of fun this season—and despite not knowing about this #tealpumpkin thing-y, he still made his own pumpkin—and it turned out all allergy friendly!  How cute!!!

Food Allergy Fact: The Many Words That Mean MILK

turnittealweek

Today I am going to share with you some information about Milk Allergies.

Here are some facts taken from foodallergy.org :

  1.  Approximately 2.5 percent of children younger than three years of age are allergic to milk.
  2. Sensitivity to cow’s milk varies from person to person. Some people have a severe reaction after ingesting a tiny amount of milk. Others have only a mild reaction after ingesting a moderate amount of milk. Reactions to milk can be severe and life-threatening (read more about anaphylaxis).
  3. Individuals who are allergic to cow’s milk are often advised to also avoid milk from other domestic animals. For example, goat’s milk protein is similar to cow’s milk protein and may, therefore, cause a reaction in individuals who have a milk allergy.
  4. Some brands of canned tuna fish contain casein, a milk protein.
  5. Studies have found that a very small percentage of children with milk allergy are also allergic to beef. Talk with your allergist to see if you should remove beef from your milk-allergic child’s diet.  (relation of meat and milk allergies)

Before we continue, this is how Maxwell Loren feels about all of his allergies 😉

myallergymaxbeingsilly

Changing it up a bit, we will now take a look at words that don’t say MILK but mean that they are STILL milk (or byproducts of it).

It makes it really difficult when looking through products if you don’t know these words—and it makes for severe pain or difficulty for your child if you MISS these words.

So, here goes!  And, yes, it is extremely overwhelming.  And a HUGE kudos to www.kidswithfoodallergies.org for compiling such detailed information for children and parents like my Maxie Moo and me/Richard (as the parents), as we need it desperately.

Click on this link for an AWESOME and very comprehensive but ONLY 2-page, easy to read, PDF on MILK ALLERGIES AND HIDDEN WORDS.

I’m on my way to printing it out for me as I type this as well.

MILK ALLERGIES AND HIDDEN WORDS

It will include words like:

Casein & caseinates,

Galactose

Ghee

Lactyc yeast

Recaldent

Rennet

Whey

Oh…and so much more!

Again—to get the entire PDF, click on the above link:  Milk Allergies and Hidden Words.  You will really appreciate the list and all of the time and effort people put into it.

I hope that this helps your allergy journey—if even a little!

God bless,

Brooke

P.S.  I know, I know…you are like me and want to hide from these things, but—since we can’t—let’s do this together as a TEAM—encouraging one another and sharing all of the information we can, so that we are better able to serve our children!

Speaking of hiding, here’s Max playing hide and seek with his precious sister, Josephine.  I found him!

myallergymaxplayinghideandseek