When life hands you allergies…find what works!
For Max, it’s Hershey’s Chocolate Syrup!
When life hands you allergies…find what works!
For Max, it’s Hershey’s Chocolate Syrup!
Well, I got GREAT news again today. I have a second article picked up by The Mighty that will be published in the future. When it is published, they will send me the email with the link, which I will then pass along to you.
In the meantime, my ALLERGY BOY is officially in the 5/6 year old class at our local school, and the school is scared. I am scared. Max’s dad is scared. I think we are ALL scared. In a small village, Max is the first to arrive carrying EpiPens and life-threatening allergies. But it has been hashed out: he will only ever consume or touch his food.
This may not seem like a big deal in your country where food allergies are well known, discussed and people are pro-active on the fight-BUT in the country which we reside, it is still a very big unknown, under discussed, and, therefore, very scary for all of us in the game.
Emphasizing how scary this life we walk in this world we walk is, I bring you an absolutely tragic story of a woman that, after being repeatedly assured at a restaurant in Hungary her food was nut free in all ways, suffered anaphylactic shock that has left her in a state of suffering from life-altering brain injuries.
I have already watched my son receive CPR treatment while he was in a full-coma in the ICU. The nurses kicked us out and bagged our son while waiting for the doctor to arrive. It is because of their life-saving treatments, he appears okay. Eventually they were able to intubate him and get a steady flow of oxygen going.
But, the thing is, every single day that I walk my son outside and purchase a food item for him, I risk this exact thing happening. Because, no matter how many guarantees of safety we are given, my son walks a very unforgiving road.
Fear makes me want to hide him away. But that is not living.
And so we walk. Hoping for life.
Please click here to watch the video and read the link:
When my son was in the ICU in Poland, and he was being brought out of his coma, he would look at me with big eyes and cry. But we couldn’t hear him because the machines were still doing all of the breathing for him. And I literally hid behind my husband.
I wasn’t a strong mom. I was very weak.
I didn’t know how to handle the pain of my baby in so much pain.
And my husband stepped forward and took hold of my baby’s hand and just sang to him. And prayed for him. And stroked him.
I looked at my husband, broken, and yet such strength.
And, so, today, as we are suppose to thank someone for this #TurnItTeal week of allergy awareness, I would like to thank him, Richard Nungesser. Our family’s strength.
You know…I wasn’t sure if I wanted to marry Richard. He wanted to be a missionary and travel the world sharing the Good News of Jesus with a bunch of people he didn’t know. That was a bit too zealous and ambitious for me.
I was okay sharing the Love of Jesus with people in my home city. That made me happy. And comfortable.
But I really loved this man. And so we wed.
Man—it has been and is an AWESOME yet wild ride!
After years of infertility, we were blessed with our sweet cheeks. She is now a decade (as she calls it). Her name is Adelyne Marguerite.
Then we had another. That we named Sam. Sam does not have a birthdate nor full name, because we lost Sam in miscarriage. But Sam holds an equal-sized portion of our hearts.
After Sam, we had Max. Max did not want to live. Max wanted to die. We still have to fight for Max’s life. But he’s here. And his name is Maxwell Loren. He is named after his daddy, Richard Loren. Max is our allergy kid. #dairyfree #peanutfree #beeffree #nutfree #foodfree #airfree #bubbleboy 😉
Lastly we have Josephine. Josephine wanted to live—but she sure wanted to come early. Thankfully, she waited. She must have known Mommy was still tired from trying to keep Max alive. Her name is Josephine Diane.
These four beings are the GREATEST reasons why I love my husband MOST!
And the fact that he walks day in and day out of this journey with me as a mommy, toddler mommy, allergy mommy, life-surviving nicu/icu/ventilator/coma baby mommy, miscarriage suffering, bilingual raising, Jesus-loving mommy…
While feeding the homeless, providing education for children, medicine for the sick, and hope for the hopeless…
Yep…It’s why I thank him.
He doesn’t just #TurnItTeal … He #KeepsItReal !
I love you, Richie,
By the way, you can find me on Facebook—I invite you to come and simply be my friend! Click here for that 🙂
I also blog at And 2 Makes Crazy …Usually a fun read. Or one that will make you cry. But I try to keep it real.
And a huge thanks to #TurnItTeal and @PlayroomReport for this amazing Allergy Awareness Week!
Today I am going to share with you some information about Milk Allergies.
Here are some facts taken from foodallergy.org :
Before we continue, this is how Maxwell Loren feels about all of his allergies 😉
Changing it up a bit, we will now take a look at words that don’t say MILK but mean that they are STILL milk (or byproducts of it).
It makes it really difficult when looking through products if you don’t know these words—and it makes for severe pain or difficulty for your child if you MISS these words.
So, here goes! And, yes, it is extremely overwhelming. And a HUGE kudos to www.kidswithfoodallergies.org for compiling such detailed information for children and parents like my Maxie Moo and me/Richard (as the parents), as we need it desperately.
Click on this link for an AWESOME and very comprehensive but ONLY 2-page, easy to read, PDF on MILK ALLERGIES AND HIDDEN WORDS.
I’m on my way to printing it out for me as I type this as well.
It will include words like:
Casein & caseinates,
Oh…and so much more!
Again—to get the entire PDF, click on the above link: Milk Allergies and Hidden Words. You will really appreciate the list and all of the time and effort people put into it.
I hope that this helps your allergy journey—if even a little!
P.S. I know, I know…you are like me and want to hide from these things, but—since we can’t—let’s do this together as a TEAM—encouraging one another and sharing all of the information we can, so that we are better able to serve our children!
Speaking of hiding, here’s Max playing hide and seek with his precious sister, Josephine. I found him!
My son did not have a killer kiss. It was, however, a HUGE wake-up that it could actually happen. I have shared my son’s story before, and since today is #TBT Your child’s reaction and story, I thought I would just link it in here, so you have a chance to read.
As in every story, his is evolving…every day. And, every day, I learn more about him, what makes him sick, how I fight every day for his life, and try not to panic about his future.
But I know that I am not alone. So many of you out there are like me. Fighting for your children’s safety, too. I commend you! Carry on, Mom and Dad warriors. You rock!
Here’s my kid’s story. And a great look at how Maxwell’s allergies have sure humbled this once very arrogant momma 😉
We’re back! Today we are suppose to talk about our favorite allergen-free alternative.
But I would like to kill two birds with one stone and talk about tomorrow’s topic, too: Hardships/realities of Food Allergies.
Now, this is a topic that I can get behind…
It’s hard enough having to make sure that my child does not consume anything with his allergens in them—but the COST of these allergy-free foods is CRAZY?
Am I right? Can I have an Amen?!
I mean, seriously, folks. My hubs is a pastor and we have a foundation for the homeless…for a living. And because my kid has allergies I have to pay nearly $4 for his itty bitty box of milk?!
I am not sure I have a favorite allergen replacement because the cost of all of them STINK!
Plain and simple…STINK!
I guess the applesauce packs. They aren’t too costly.
Or the gummy candies—because he can eat them.
But that isn’t too healthy, now, is it.
Fresh fruit—yes! But I am also a mom to three—2 of them in their toddler phase (although Max is now phasing out of that). Which means I am lucky if I make it out of the house with shoes and shorts not pajamas and slippers.
And I live in a foreign country—in a VILLAGE! Which is serene and lovely. But sometimes I just miss home soooooooooooo much! I miss being close to family. I miss the convenience of my home country. I just do. Such is life.
Back to the fruit (went off on a tangent)…
So, yes. Fresh strawberries and raspberries and blueberries.
But what little kid likes apple skin?
Not mine…So the more affordable fruit I have to prepare.
And then there are grapes.
But a large portion of grapes in Poland have seeds. So we go for the seedless grapes—which then are 3xs the cost.
Finally watermelon. But it’s sticky and doesn’t travel well.
Well, there are dried raisins. That’s true. But then it’s not fresh, right?
Something that is not fruit:
Popcorn is cheap. It sure is—but we all know popcorn is best when popped hot.
Perhaps sunflower seeds????
Any sunflower seed I have given him in Poland has caused extreme welting. I am not sure if it is the seed itself or the processing plant. Most of the language on the packaging is in Russian.
So then that leads to my paranoia about all seeds and processing—which leads me to only purchase Chia seeds. I throw those in his smoothies.
Potato chips??? Well, those may be his favorite snack, but I am really trying to cut back on throwing those at him—since, you know, it’s not remotely healthy. Addicting, yes. Healthy? Heavens no!
And finally pretzels. But not the crackers with the letters because they have whey. Nor the crackers with the animals because they have whey. But the round pretzels, twisted pretzels, and the straight pretzels, he can eat.
Be careful if you eat sourdough pretzels in the States, however, they may also have dairy. Fresh and hot pretzels, too. UWAGA (which means—be careful/caution).
But, after a while, pretzels start to taste like cardboard when you consume too many.
And, do you ever notice, that pretzels and peanuts are always touching in the grocery aisle? So I walk down the aisle nearly screaming—KEEP YOUR HANDS TO YOURSELF! DO NOT TOUCH ANYTHING! THERE ARE LOTS OF OWIES HERE!!!!
And my poor 3-year-old panics and hugs my leg. Okay. Okay—he’s gotten past that. But he walks dead in the center of the aisle and doesn’t touch a thing.
Tic tacs at the checkout and gum…Because most of the other grab food has milk chocolate, milk, or peanuts. Yea for us 😉
But, really…we do have alternatives that we use with everything. And, you mostly can’t tell the difference at all!
Oat milk…We use it in all recipes.
Soy yogurt…You can even make your own if you have a starter yogurt.
Coconut oil…It’s fantastic…and not too coconutty at times.
There was an amazing rice/coconut cheese that actually melted in hot cheese sandwich that we found in Germany. Unfortunately, we haven’t found any in Poland. But it is brilliant and out there. It’s just hard for us to find.
Carob chocolate chips…No soy or milk. Max seems to be able to tolerate these. These are also harder to find.
Rice pudding. It’s not a chalky-tasting as soy pudding. You just have to make sure it is rice pudding with NO MILK.
Homemade chicken soup with egg noodles. We have to be careful with store-bought broths and flavorings as many include beef, whey, or peanut oil.
I’ve blogged plenty about Cookie Butter. It’s sweet—but it is also divine. It can be made in cakes, on apples, on sandwiches, and so much more. We love it. My kids even eat it by the spoonful like we used to eat peanut butter.
And, if you missed it above, we love using chia seeds in smoothies. The trick is to blend them plenty up, otherwise, it has the raspberry seed texture to it, and you will feel as if you need to pick at your teeth. They help give your kid an extra bit of protein. Heavens knows, our kids need all the extra help they can get.
Tortillas. We make Max hot tortillas like we would make our daughters cheese crips. We just make his with his “butter” or cinnamon and sugar like a special treat.
And, of course, chips and salsa! Who can’t go to town on those?
We love waffles and crepes, and we make our own. They also save well to be eaten on a second day, if you so desire. And you can even warm your waffles in the toaster, if you so choose.
Here are our favorite recipes for waffles and crepes (I think I have shared the waffle one before, but it’s always good to see it again).
The most important thing to remember, is just switch out your allergy owies with the replacements that work for you:
Here’s the cookie butter we tend to buy while in the States. Holland has a different brand—but just as good.
This cookie butter, however, is fantastic because it comes in CRUNCHY or SMOOTH. Just like peanut butter!!!!
My 2-year-old has no allergies. But because her brother (a year older) does, I have raised the two of them nearly exactly the same with food items. My littlest didn’t even have a drop of real ice cream until we were recently at a friend’s house for lunch. I tried to give her the sorbet her brother was eating, but her big sister (10 years old) was eating real ice cream—and she had a bite. My youngest (the two year old allergy free kid) has not wanted a single bite of sorbet since.
It’s made it a bit more difficult for me now. She knows she likes whipped cream. He watches with big eyes.
They share the same cereal milk (oat milk)…
But when I have a big frothy coffee, she can eat some of the froth—where he cannot.
There is a lot that is not fair in the life of an allergy child—but I had to realize that just because Max has allergies, doesn’t mean Josephine has to live as if she does. And, although I try my best to make them the same foods, there are times when she does get an extra bite here or there. And so I always try to have a little something extra for Maxie on hand. Such as Oreo cookies. Or gummy candies. And he doesn’t even have to share.
If you have great dairy and nut free allergy favorites, I would LOVE to hear about them!
And, believe me, if you have frustrations. You are not alone. I hear you. I understand you.
Here’s to us raising our Allergy Kids!